Saturday 25 April 2015


I have returned to work.  I was exhausted come Friday, but on the whole, forcing my lazy ass to get up and go to work every day has been beneficial for me on many levels.  As my stamina builds and I get into a routine in the coming weeks, I'm betting my exhaustion will fade away.

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In the video below, the second lady, Nicole Correy, was diagnosed with the same type of MS (primary progressive - PPMS) as I was.  The stats say that PPMS is the type of MS least likely to show any improvement following HSCT, and the odds of the treatment stopping progression are also the lowest of any type of MS, but still pretty good (in the 60-70% range).  Judging by the video,  Nicole's disability was worse than mine at the time of HSCT.  Two years have passed since her treatment and she has improved.  Her walking ability isn't perfect,  and it may never be, but she's able to walk without aid, and live independently.  That is my goal.  "There is no Plan B" (stole that quote, and it is a good one).

https://www.youtube.com/watch?v=ozoKBN-6cNQ&feature=youtu.be

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I am a basketball fan, and the NBA playoffs are underway.  This year, I am down with the King - I think Cleveland will win.




1 comment:

  1. Hi Aaron, I have PPMS too and had HSCT in Moscow 20 months ago. I'm putting together data on those with PPMS that have had HSCT. I haven't been able to locate you on FB or the HSCT forum. Please let me know how to send you a message. Vicki Taylor Wilson

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